Those of you who have been around for a while know that I’ve been symptomatic since I was 16 years old, but I was only diagnosed with fibromyalgia a little over a month ago. (I am 43 years old.) That means that for all these years I have been unmedicated. Even now, my meds include Celexa (antidepressant), Claritin (antihistamine to keep my urticaria under control), and Zantac (for GERD). I take ibuprofen when the headaches get bad. I do not take any medication for the joint or muscle pain. (Seriously. WTH, man?)
The first week I was on meds my joints felt pretty good. I don’t remember the last time they felt that good. I thought maybe it was a side effect of the Celexa, and I was so happy! But that wore off. I’m back where I was before in terms of pain, but I’m used to it. It sucks, and I hate it, but it is normal for me. What isn’t normal is the fatigue that’s been plaguing me for the last 10 days or so. (I don’t actually remember how long it’s been. I forget things like that. Also, I often sit here, poised to type something, but I have to wait until I can remember what the word is that I had in my mind a second ago. This pisses me off to no end because, while it may not be apparent, I actually had an excellent vocabulary once upon a time.)
What is normal for me is sleep deprivation. I usually either can’t sleep or I only sleep for 3-4 hours at a time. I might get a week or two of good, solid sleep, but that never lasts. Lately, though, I will sleep a full night, be awake for 2-3 hours (sometimes less), then feel overwhelmed by exhaustion and need to go back to sleep. I wake up a few hours later, and I spend the whole day yawning and fighting to keep my eyes open. I thought I was getting my energy back, but that seems to have been a fluke.
The question is: is this normal? The last time I went to the doc my blood pressure seemed particularly low (systolic pressure –top number– for me is usually between 114 and 117. It was 99.) That was after two weeks on Celexa, which I know can lower blood pressure. I’ve been on it just over a month now.
I don’t necessarily want to go off the Celexa. While I think it may be lowering my blood pressure and therefore affecting my ability to stay awake, I also haven’t thought much about how it would be better if I were dead and weighing the pros and cons of, say, getting hit by a bus versus contracting a terminal illness. So, it has that going for it.
I’m going in to see the doc next week. I guess I just wondered if this is something I can expect to deal with in an ongoing fashion. Also, what do you do to combat it? Lying down so much is not helping my joints or muscles.
Thanks,
AZG
Hey girl. I take a very low dose of tramadol and do yoga all the time. if there are any studios near you please give it a try. I know its hard to find the time. I won’t take anything with a suicidal side effect and advil kills my stomach. But when it really comes down to it everyone is different. It is going to take time to find out what works best for you. The fatigue will always be there but I swear yoga has saved my life, that and coffee 🙂 feel better my friend.
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I drink enough coffee to support several under-developed nations. Or at least one farmer.
I’m not really in a position to join a studio. I found a “yoga for beginners” video I thought I might try. I know it’s not as helpful as having an experienced yogi assist, correct form, encourage, etc. but I figured it was better than nothing. What do you think?
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Yoga for beginners is great! I do yoga at home as well. You might want to try gentle yoga. “Do yoga with me” website is great. Free videos.
>
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Oh, fantastic! Thank you so much! 🙂
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I have no useful advice… but I did learn some stuff…
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The More You Know!
(They never did explain: the more you know WHAT??)
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That is the part you are supposed to know, I guess.
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huh! The More You Know…
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I like knowing stuff
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You need to come reply to dj. You should see what he’s planning to do with his palms…
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I don’t even know what that means…
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sigh
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I know
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Sorry, I can’t offer any advice either. But, do you know Merry? (http://knockedoverbyafeather.wordpress.com/) She might be able to provide some insight/guidance.
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Um, kindly disregard my comment, as she was commenting at the same time as me… *facepalm*
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You were kind to make the suggestion. No facepalms required. 🙂
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Too late, my face has already been palmed.
Which isn’t hard to do. I don’t have the largest head, and have fairly large hands.
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*snort*
That was funny. I now have images of a pinhead with shovel hands smacking himself upside (frontside?) the head.
Oh! I’m gonna enjoy that for a minute or two…
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Nice!
Enjoy, enjoy.
We could stick my shovel hands on a wheel and have constant palming action.
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I’m gonna leave that one for Art…
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That’s probably what I’d have done too.
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I even went and told on you.
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Hey! That’s cheating!
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Nanny, nanny, boo-boo!
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Grrrrrrrr!!
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heehehehehee!
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😀
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I am all for this idea…
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We figured you would be.
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well you figured right
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I like it when that happens.
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It should happen more often… HA!
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I agree!
Ha! Ha!
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Life would be better if everyone just agreed with me all the time.
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I think you should probably enter politics.
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I tried to rule the world
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what happened?
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The Canadians revolted against my authority
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That was silly of them.
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They do not take direction well
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I’m a bit shocked to hear that, actually.
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me too
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I forget what I’m shocked about.
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Canadians being revolting?
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Not following directions well, I think, now that you mention it.
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oops
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Oops? No oops! Only forward!!
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my fingers must have slipped.
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It happens. But, we just have to pick them up and type on.
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WITH WHAT DO I PICK THEM UP? I’m typing with a pencil I have gripped between my teeth. It is very slow and difficult.
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Toes would be my first option – but, that’s the soccer player in me talking.
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My daughter is the one with the monkey toes, and she’s in school right now. *sigh*
I’m going to get lead poisoning.
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graphite poisoning, if anything. they haven’t used lead in years and years.
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oh, now you’re going to get all *logical* and *factual*, huh?
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I like to mix it up… cuz, DJ.
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I’m in your blogs, commenting in your posts.
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I noticed. Your gravatar is trying to take over the kingdom!
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See, I know you have to start small. I’m not going to try taking the whole world over at once. I’ll do it one kingdom at a time…
Mwa-Ha Ha Ha-Haaaa!
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That’s an excellent plan. My Knight might have something to say about you trying to take over this kingdom first.
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I’ll bite his legs off.
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Pah, that’s nothing but a flesh wound.
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there you go, stealing my lines again.
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I better go away, or you’ll taunt me a second time.
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Run away! Run away!
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then I will have to do it again
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That was my evil plan all along.
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I suspected as much
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Everybody wants to rule the world.
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But I actually did for a while…
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I don’t think I’ve gotten that far yet.
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well who has?
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beats me.
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somebody should… uh… I mean… ummmmmmm
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hey, now…
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HA!
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ah!
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yup
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I’m torturing dj again. It’s fun.
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keep up the good work
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oh, I will. we all have our talents, eh?
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Most of us do
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I’m not even sure what you guys are talking about at this point. I don’t think I want to know…
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We have our own language…
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Oh. Wait.
Jeez, what is wrong with me?
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We are working on figuring that out…
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Please let me know if you do.
::wanders away humming::
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we will get back to you
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Yup. She’s one of the first people I started following. Thanks, DJ.
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Ask for a muscle relaxer. That will help a bit. And don’t be afraid to ask for some pain killers for the bad days. I have had fibro since 1998 and I know a lot about it.
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Thanks, Mer. I’ll ask when I see doc next week. Do your meds ever make you fatigued like this?
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I honestly can’t tell anymore. It just helps with the twitching. I wish I had better news to deliver on the fatigue front. Coffee, and lots of it.
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Oy. If I drink any more coffee it’s going to start coming out my pores.
(ewww…)
Thanks for the info.
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Anytime. You’re not alone.
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